As internationally recognized pioneers in their field, Drs. Volicer and Hurley have brought critical attention to the unique issues and needs of people in the advanced stages of dementia. In this book, they bring together a culmination of more than 20 years of research on late-stage dementia, providing the best evidence-based measurement scales available for researchers and care providers who are seeking to improve care for people in the final stages of this increasingly prevalent disease.
The 11 scales presented in this book have been proven effective in eliciting meaningful data from study subjects, patients, and long-term care residents whose dementia-related communication difficulties reduce their ability to self-report or respond in traditionally measured ways. With proven reliability and validity, the scales accurately assess the following domains: dementia severity, satisfaction with care, symptom management, comfort during dying, quality of life, activity involvement, discomfort, pain, quality of visits, agitation, and rejection of care.
Careful analyses of each scale includes:
- a detailed explanation of the concept being measured
- the original published research article outlining the development and testing of the scale
- a summary of how the scale has been used by others
- suggestions on how to use the scale for new research
- a user-friendly measurement form with complete instructions for use
A quick-reference summary chart of the scales helps researchers and care providers decide which scale is right for their research or intervention goals. All forms are also available as downloadable PDFs.
These carefully selected scales will serve physicians, nurses, psychologists, and other professionals who are planning studies ranging from large-scale randomized controlled trials to the evaluation of unit-based quality improvement programs. This is a unique and indispensable collection for any researcher or practitioner in the dementia care field.